在罗马尼亚获得儿科息护理的挑战和障碍类型:基于焦点小组的定性研究,以半结构化讨论指南为指导
Mihaela Hizanu Dumitrache1, Liviu Stafie2, Alina Plesea-Condratovici3
1Faculty of Medicine and Pharmacy, Doctoral School of Biomedical Sciences, "Dunărea de Jos" University of Galați, 47 Domnească Street, 800008 Galați, Romania.
Medicina (Kaunas, Lithuania)
|January 28, 2026
概括
罗马尼亚的儿科息护理发展不足,使得患有生命危险疾病的儿童及其家属很容易受到伤害. 改善接入需要国家战略,专业人员和综合支持系统.
科学领域:
- 医疗保健政策 医疗保健政策
- 抚慰性护理是一种缓解性护理.
- 儿童健康 儿童健康
背景情况:
- 罗马尼亚的儿科息护理服务分散且不足.
- 这对患有终身疾病的儿童及其家属在获得必要护理方面带来了重大挑战.
- 由于缺乏国家战略,人员短缺和社会经济因素,脆弱性增加.
研究的目的:
- 调查患有生命限制疾病的儿童的父母和照顾者的经历.
- 分析涉及儿童支持的公共机构和非政府组织的观点.
- 确定在获得儿科息护理方面的主要障碍和促进者.
主要方法:
- 使用三个重点小组进行定性研究,并使用半结构面试指南.
- 使用MAXQDA软件进行主题综合分析的数据.
- 参与者包括24个人:父母/照顾者 (n=11),公共机构代表 (n=7) 和罗马尼亚Bacău县的非政府组织代表 (n=6).
主要成果:
- 确定了儿童和家庭复杂的医疗,情感,社会,教育和精神需求.
- 父母报告说,他们觉得自己被治疗系统抛弃了,强调疼痛控制,安全和社区支持.
- 专业技能缺口,部门间协调,结构性障碍和缺乏数据阻碍了护理提供.
结论:
- 儿科息护理必须成为国家优先事项,需要专门的战略和扩大专业服务.
- 一个综合的,以儿童和家庭为中心的方法,解决所有护理维度至关重要.
- 加强员工培训,公众宣传活动和社区支持对于减少不平等和改善生活质量至关重要.
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