探索家长对医疗技术的看法,以支持家庭小儿息护理中的沟通:一项定性研究
Linda J Martinsen1, Heidi Holmen2,3, Simen A Steindal4,5
1Department of Nursing and Health Promotion, Faculty of Health Sciences, Oslo Metropolitan University, Postbox 4, St. Olavs Place, Oslo, NO-0130, Norway. lindajoh@oslomet.no.
BMC palliative care
|January 30, 2026
概括
父母希望在家中提供简单,安全的医疗技术,以提供儿童息护理. 整合数字工具可以减少干扰和改善沟通,但可用性和数据访问是家庭的主要关注点.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 医疗技术整合 医疗技术整合
- 以家庭为中心的护理
背景情况:
- 基于家庭的儿科息护理需要定制的,以家庭为中心的方法.
- 医疗技术可以增强这些多样化的家庭的沟通,协调和护理连续性.
- 在了解如何将数字工具整合到儿科息护理的日常生活中,存在一个研究缺口.
研究的目的:
- 探讨家长们对在家庭小儿息护理中使用健康技术的观点.
- 了解数字工具如何促进与医疗保健专业人员的沟通.
主要方法:
- 使用五个重点小组进行定性探索性研究.
- 18名挪威儿童 (1.5-18岁) 患有危及生命的儿童的父母参与了这项研究.
- 数据使用反射主题分析来分析.
主要成果:
- 数字咨询可以减少对家庭生活的干扰.
- 在电子健康记录中平衡访问和安全至关重要.
- 父母强调需要简单,用户友好的健康技术.
结论:
- 卫生技术可以提高灵活性,并支持儿童息治疗中的日常生活.
- 有效性取决于可用性,系统集成和父母对数据的控制.
- 与用户共同设计对于可持续的,与需求一致的解决方案至关重要.
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