对于残疾儿童的学龄兄弟姐妹的支持需求和可用的资源:混合方法研究
Linda K M Veerman1, Agnes M Willemen1, Suzanne D M Derks1
1Department of Clinical Child and Family Studies; LEARN!; Amsterdam Public Health, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
Journal of applied research in intellectual disabilities : JARID
|January 30, 2026
概括
智力障碍和/或视力障碍儿童的兄弟姐妹需要更好的支持. 荷兰和比利时的可用资源部分满足了这些需求,凸显了兄弟姐妹服务的差距.
科学领域:
- 儿童心理学 儿童心理学
- 关于残疾人的研究.
- 社会工作 社会工作 社会工作
背景情况:
- 调查智力障碍和/或视力障碍儿童的兄弟姐妹 (6-12岁) 的支持需求.
- 检查这些需求与荷兰和比利时现有的支持资源之间的一致性.
研究的目的:
- 了解残疾儿童的年轻兄弟姐妹的各种支持需求.
- 评估荷兰和比利时兄弟姐妹支持资源的可用性和适用性.
主要方法:
- 与13个兄弟姐妹进行了半结构化采访,以了解他们的支持需求.
- 进行了灰色文件审查,确定了255个组织和134个提供兄弟姐妹支持的资源.
- 利用专题分析进行采访数据和资源评估.
主要成果:
- 兄弟姐妹表示需要社交,情感支持,优质时间,关注和同龄人接触.
- 确定的支持资源是分散的,广泛的目标,只部分满足兄弟姐妹的特定需求.
- 某些需求,比如管理兄弟姐妹的行为,现有资源无法充分解决.
结论:
- 这项研究强调了兄弟姐妹所确定的支持需求与可用的资源之间的不一致.
- 调查结果可以为提高兄弟姐妹支持服务的整合和有效性的策略提供信息.
- 建议更好的资源配置和发展,以应对兄弟姐妹的独特挑战.
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