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使用社区参与的研究方法,优先考虑患有状细胞疾病的成年人的自我管理需求

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    PubMed
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    患有状细胞疾病 (SCD) 的成年人需要更好的医疗保健和自我管理的支持. 关键需求包括改善从儿科到成人护理的过渡,以及解决提供者偏见以提高健康结果.

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