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"当我做不到的事情时,我不想成为一个困难":一个混合方法看自闭症谱中从儿科到成人医疗保健的过渡
Briana P Keller1, Laina Heacock1, Emily Rothenberg1
1Peabody College, Vanderbilt University, Nashville, Tennessee, USA.
Autism in adulthood
|February 2, 2026
概括
自闭症年轻人在过渡期间面临不理想的医疗保健,不同群体的可访问性问题. 支持性提供者和包容性环境对于他们积极参与护理至关重要.
科学领域:
- 自闭症谱系障碍研究研究
- 医疗保健转型研究 医疗保健转型研究
- 医疗保健服务研究 医疗服务研究
背景情况:
- 自闭症患者往往获得不理想的医疗保健.
- 年轻的自闭症成年人在医疗系统过渡期间遇到发展障碍.
- 对于自闭症年轻成年人的过渡需求和经历的理解有限.
研究的目的:
- 检查自闭症年轻人的医疗保健经验.
- 调查自闭症年轻成年人对医疗保健转型的看法.
- 确定影响医疗保健获取和准备过渡的因素.
主要方法:
- 对213名自闭症年轻成年人 (18-26岁) 进行了一项混合方法在线调查.
- 该调查包括医疗保健经验问卷,过渡准备措施和开放式问题.
- 使用非参数测试分析定量数据,并通过诱导编码对定性数据进行分析.
主要成果:
- 对于女性,性别不合规,不说话和年轻的自闭症患者来说,医疗保健环境最难获得.
- 这些小组报告说,他们对自己护理的参与度较低.
- 在药物管理史和过渡准备之间发现了积极的关联.
- 定性主题包括诊断披露,员工理解,歧视,沟通和独特需求.
结论:
- 自闭症年轻人希望积极参与他们的医疗保健.
- 支持性,知识博的提供者和包容性环境对于有效的护理至关重要.
- 医疗保健提供者应在儿童到成人护理过渡期间为自闭症患者量身定制支持.
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