包容性AAC研究的指导方针:一个专注于脑成年人的范围审查
Kelsey Steffen1, Janice Light1, Lateef McLeod2
1The Pennsylvania State University, University Park, PA, USA.
Augmentative and alternative communication (Baltimore, Md. : 1985)
|February 2, 2026
概括
很少有替代和增强性沟通 (AAC) 研究涉及AAC用户. 这次审查发现,只有12%的成人脑 (CP) 研究包括AAC用户,突出显示需要更具包容性的研究实践.
科学领域:
- 康复研究 康复研究
- 辅助技术是指辅助技术的使用.
- 包容性研究方法的方法.
背景情况:
- 从历史上看,对替代和增强性沟通 (AAC) 的研究已经排除了使用AAC的有实体经验的个人.
- 确保AAC用户在研究中成为公平的合作伙伴对于解决他们的优先事项和改善结果至关重要.
- 脑 (CP) 是一种经常需要AAC的疾病,使得对这一群体的研究对用户参与特别重要.
研究的目的:
- 进行范围审查,确定AAC使用者参与有关使用AAC的CP成年人的研究的程度和性质.
- 分析 AAC 用户参与研究过程的不同角色和方法.
- 提供实用指导,并概述未来的方向,以加强在AAC. 包容性研究实践.
主要方法:
- 进行了系统的文献搜索,以确定过去22年的相关基于数据的研究.
- 专注于使用AAC的CP成年人的研究也被纳入了审查中.
- 评估了AAC用户在各个研究阶段 (概念化,设计,实施,分析,传播) 的参与.
主要成果:
- 在57项确定的研究中,只有7项 (12%),报告至少有一名AAC用户参与任何研究过程.
- 参与的AAC用户通过咨询角色,协作小组或以人为主导的方式参与.
- 大多数包括的研究采用了定性方法,少数使用了调查或干预设计.
结论:
- 目前,AAC用户参与CP成年人研究的参与非常有限.
- 审查确定了用于将AAC用户纳入未来研究中的公平合作伙伴的实际策略和方法.
- 通过在研究生命周期的各个阶段积极参与 AAC 用户,有必要推动包容性研究.
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