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分析白风患者在线资源利用情况
Nneka Ede1, Prachi Khanna1, Beth Schneider2
1Dermatology, Dell Medical School at The University of Texas at Austin, Austin, USA.
Cureus
|February 3, 2026
概括
Vitiligo 患者经常使用在线资源获得医疗建议,并了解他们的病情. 在线参与显著有助于应对白风的心理社会方面.
科学领域:
- 皮肤病学 皮肤病学
- 医疗信息学 医疗信息学
- 患者支持 患者支持
背景情况:
- 关于白风患者在线资源使用情况的研究有限.
- 了解患者在线搜索信息的行为对于有效的支持至关重要.
研究的目的:
- 调查白病患者寻求的在线信息和来源的类型.
- 评估这些在线资源对患者管理和福祉的影响.
主要方法:
- 在一个专门的在线论坛上,向白风患者分发了一份15个问题的横截面调查.
- 数据收集发生在2022年5月至6月,收集人口统计和在线资源参与信息.
- 用描述性统计数据分析了95名参与者的调查答案.
主要成果:
- 超过79%的受访者积极使用在线资源进行白风信息和讨论.
- 医疗网站,白风特定组织和社交媒体是最常访问的资源.
- 在线资源主要帮助患者管理与白风相关的心理社会挑战.
结论:
- 在线资源对白风患者如何应对和管理他们的病情有很大的影响.
- 这些发现强调了在线参与白风患者的显著心理社会益处.
- 在线平台在支持白风患者整体福祉方面发挥着至关重要的作用.
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