基于网络的骨髓切割护理干预对癌症和护理人员的西班牙裔患者的文化适应:混合方法研究研究
Xiaomeng Wang1, Lixin Song2, Amy Vondenberger1
1School of Nursing, The University of Texas Health Science Center at San Antonio, San Antonio, TX, United States.
JMIR cancer
|February 3, 2026
概括
西班牙裔癌症患者和护理人员需要文化定制的骨架护理支持. 开发的 Ostomy 自护计划 (PACE) 结合了患者的偏好,以获得更好的自我管理和结果.
科学领域:
- 在瘤学瘤学.
- 健康差异 在健康上的差异
- 数字健康数字健康
背景情况:
- 癌症治疗涉及造骨术的创建显著影响患者和护理人员的生活质量.
- 西班牙裔人口在获得支持性骨关节护理计划方面面临着独特的挑战.
- 在这个人口群体中,有限的数字健康素养很普遍.
研究的目的:
- 探索西班牙裔骨髓切割患者及其护理人员的经验和偏好.
- 为现有干预措施的文化适应提供信息.
- 为了设计 Ostomy 自护计划 (Programa de AutoCuidado de Estoma [PACE]). 为了设计 Ostomy 自护计划 (Programa de AutoCuidado de Estoma [PACE]).
主要方法:
- 采用了一种双阶段,质量驱动的混合方法设计.
- 调查和定性访谈与西班牙裔骨髓瘤患者和护理人员进行.
- 主题分析和说服力系统设计原则指导了干预开发.
主要成果:
- 关键主题包括对生活在口腔骨架的看法,寻求支持的行为以及手术后的挑战.
- 参与者强调需要优先语言,多媒体交付和早期多式联络教育.
- 研究人员注意到数字健康素养较低 (eHEALS <26) 和并发症 (CCI 3.21).
结论:
- 了解西班牙裔 Ostomy 患者和护理人员的特定需求至关重要.
- 通过利益相关者的见解和有说服力的设计,PACE的干预在文化上得到了调整.
- PACE旨在改善拉美裔癌症患者的参与,自我管理和健康结果.
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