通过社区参与,提高自闭症年轻人的MRI可访问性
Antonio F Pagán1, Grace Gogola1, Ashley Huang1
1Department of Psychiatry and Behavioral Sciences, McGovern Medical School, UTHealth Science Center at Houston, Houston, TX USA.
Discover psychology
|February 5, 2026
概括
基于社区的参与性研究 (CBPR) 提高了自闭症拉丁裔年轻人的MRI可访问性. 关键的改进包括更好的准备,感官支持和人类联系,这导致了更具包容性的神经影像研究.
科学领域:
- 神经成像研究研究的神经成像.
- 自闭症研究的研究.
- 参与社区研究的研究.
背景情况:
- 自闭症患者在获得神经成像 (如MRI扫描) 时经常面临障碍.
- 现有的MRI协议可能无法充分满足自闭症患者的感觉和心理需求,特别是来自不同文化背景的年轻人.
- 基于社区的参与型研究 (CBPR) 提供了一个框架,通过集中社区声音来解决这些差异.
研究的目的:
- 为了提高MRI可访问性,并优化自闭症拉丁裔年轻人的体验.
- 在这个特定的人口群体中确定MRI参与的障碍和促进者.
- 为开发更具包容性和文化响应性的MRI协议提供信息.
主要方法:
- 采用了基于社区的参与式研究 (CBPR) 方法.
- 从18名自闭症拉丁裔年轻成年人 (18-25岁) 收集数据,通过焦点小组 (n=9,MRI-naïve) 和个人访谈 (n=9,之前的MRI经验).
- 对社区科学家会议和参与者会议的成绩单进行了主题分析.
主要成果:
- 主要障碍包括最初的恐惧和MRI噪声的感官体验.
- 参与者强调需要加强准备,包括模拟扫描仪模拟和可访问信息.
- 人际联系,员工支持,个性化结果和补偿被确定为参与的关键促进因素.
结论:
- CBPR有效地识别了自闭症拉丁裔年轻人的MRI特定需求和偏好.
- 产生了可操作的见解,以改善MRI协议,重点关注舒适性,透明度和文化响应性.
- 实施这些建议可以促进自闭症成年人更多地参与神经成像研究.
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