阿尔茨海默症领域:基于需求分析和混合方法试点评估过程的结果,为护理人员开发一个数字平台
Desiree Piromalli1,2, María Aurora Cañadas-Romero2, Marta Ivirico-Prats2
1Universitat Abat Oliba CEU, CEU International Doctoral School (CEINDO), Social Research Area, Fundación Pasqual Maragall, Barcelona, Spain.
Frontiers in digital health
|February 5, 2026
概括
与家庭护理人员一起设计的AreAreaAlzheimer平台为痴呆症护理提供了宝贵的支持. 参与式设计确保它满足用户的需求,尽管数字素养挑战仍然存在.
科学领域:
- 数字健康数字健康
- 人与计算机的交互
- 老年学是一门学科.
背景情况:
- 痴呆症,特别是阿尔茨海默病患者的家庭照顾者需要量身定制的技术支持.
- 以用户为中心的设计对于开发有效的数字健康解决方案至关重要,这些解决方案可以满足护理人员的复杂需求.
- 现有的数字工具可能无法充分满足痴呆症护理人员的实际,情感和信息需求.
研究的目的:
- 描述AreAreaAlzheimer以用户为中心的设计和评估,这是一个基于网络的痴呆症护理人员平台.
- 通过用户的积极参与,确保技术解决方案与护理人员的实际需求保持一致.
- 评估AreAreaAlzheimer平台的可用性,可访问性和感知的有用性.
主要方法:
- 一种代的,参与式的设计方法,涉及419个人,包括照顾者和痴呆症患者.
- 调查,焦点小组和专题分析,以确定关键的支持维度 (信息,物流,情感,社会).
- 标准化可用性测量 (SEQ,SUS,PUS) 和基于场景的测试用于平台评估.
主要成果:
- 该 AreAreaAlzheimer 平台在可访问性 (4.5/5) 和可用性 (74.3/100) 方面获得了很高的评分.
- 感知到的有用性被评为较低 (3.4/5),定性反突出了实际价值,但指出了数字素养较低的用户面临的挑战.
- 调查结果表明,需要简化导航和自适应界面功能来增强用户体验.
结论:
- 参与式设计可以为痴呆症护理创造包容性和有效的数字健康工具.
- 让护理人员和痴呆症患者参与设计过程可以提高平台的相关性和用户的自主性.
- 未来的研究应该将这些发现纳入正式协议,以推进参与式的数字健康创新,以支持痴呆症.
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