在帕金森病的症状沟通视觉自我报告
Wang-Jung Hur1, Jeong-Woo Seo2, Miso S Park3
1Clinical Trial Center, Daejeon Korean Medicine Hospital of Daejeon University, Daejeon, Republic of Korea.
概括
帕金森氏形象自我 (PIS) 报告应用程序有效地捕捉了患者报告的帕金森氏病 (PD) 症状,增强了沟通和远程监控. 它的数字实用程序显示了个性化的PD护理的希望.
科学领域:
- 神经学 神经学
- 数字健康数字健康
- 患者报告的结果
背景情况:
- 帕金森病 (PD) 的管理依赖于临床医师的评估,如MDS-UPDRS.
- 帕金森氏形象自我 (PIS) 报告应用程序是为了补充这些评估而开发的.
- PIS使患者能够通过数字自我报告PD症状,包括疼痛,,刚性和情绪状态.
研究的目的:
- 评估PIS报告的有效性和数字健康实用性.
- 将PIS应用程序中的患者报告结果与临床医生评级的MDS-UPDRS评估进行比较.
主要方法:
- 78名PD参与者完成了基线和8周后续评估.
- 统计分析包括ANOVA,相关性,千平方测试和科恩的卡帕.
- PIS结果与相应的MDS-UPDRS项目进行了直接比较.
主要成果:
- 在MDS-UPDRS疼痛严重程度水平中,PIS疼痛得分显著不同.
- 疼痛和OFF周期,以及疼痛和快乐,显示出显著的相关性.
- 震报告显示与临床医生评级相当一致 (κ=0.36),而刚性显示的一致性可以忽略不计 (κ=0.01).
结论:
- 该PIS报告作为一个有价值的数字工具,用于改善患者与临床医生的沟通和PD症状的远程监测.
- 该应用程序有效地捕捉了PD患者的疼痛,OFF状态和情绪症状.
- 将PIS与可穿戴设备和远程医疗相结合,可以推进以患者为中心的PD护理.
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