家庭息护理中的数字患者报告结果指标:可行性研究
Katerina Hriskova1, Isabel Sophie Burner-Fritsch1, Farina Hodiamont1
1Department of Palliative Medicine, LMU University Hospital, LMU Munich, Munich, Germany.
Palliative medicine
|February 6, 2026
概括
数字患者报告结果测量 (ePROM) 显示了对数字识字患者的息性家庭护理的可行性. 挑战包括患者的不稳定性和技术障碍,但一致的使用支持护理质量.
科学领域:
- 抚慰性护理是一种缓解性护理.
- 数字健康数字健康
- 医疗信息学 医疗信息学
背景情况:
- 患者报告结果测量 (PROM) 对于以患者为中心的息护理至关重要.
- 数字PROM (ePROM) 在家庭息护理环境中的可行性在很大程度上尚未被探索.
研究的目的:
- 评估在专业息性家庭护理 (SPHC) 中实施电子PROM (ePROM) 的可行性.
- 评估电子综合息治疗结果表 (eIPOS) 的可用性和技术方面,在现实世界的SPHC环境中.
主要方法:
- 一个混合方法可行性研究 (Palli-MONITOR第二阶段) 涉及四个德国SPHC团队.
- 患者使用个人设备完成eIPOS,数据传输到SPHC电子病历.
- 与SPHC专业人士的重点小组进行了聚焦,以收集有关可行性和障碍的定性见解.
主要成果:
- 招募率为整体4.7%,符合条件的患者中为22.7%;82名患者中有60人完成了研究.
- 总共提交了470张eIPOS表格,对于封闭项目 (最大470张) 的不响应率很低. 5.3%). 这是一个很好的例子.
- 专业人士发现了包括患者不稳定,护理时间短,时间限制,团队态度和技术障碍 (互联网访问,设备熟悉) 在内的挑战.
结论:
- 对于SPHC的数字素养患者来说,ePROM,特别是eIPOS是可行的,证明了一致和完整的表格填写.
- 预期寿命有限和技术障碍阻碍了SPHC中ePROM的普遍采用.
- 当在SPHC中适当实施时,ePROM可以有效地支持以患者为中心的护理.
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