了解瘤学前期护理规划:面对以患者为中心的决策的障碍,看法和途径
Fulvio Bergamo Trevizan1, Carlos Eduardo Paiva1,2,3, Livia Costa de Oliveira1,4
1Research Group on Palliative Care and Health-Related Quality of Life (GPQual), Barretos Cancer Hospital, Barretos (SP), Brazil.
Palliative & supportive care
|February 6, 2026
概括
癌症患者经常误解预先护理计划 (ACP),面临诸如文化禁忌和缺乏清晰信息等障碍. 解决这些问题需要更好的教育和机构支持,以有效实施.
科学领域:
- 在瘤学瘤学.
- 生物伦理学生物伦理学
- 卫生沟通健康沟通
背景情况:
- 预先护理计划 (ACP) 对于以患者为中心的终身护理至关重要.
- 了解患者对ACP的看法对于有效实施至关重要.
- 关于中等收入拉丁美洲环境中的非洲和非洲国家和地区的研究有限.
研究的目的:
- 探索癌症患者对提前护理计划 (ACP) 的理解.
- 确定在临床实践中有效实施ACP的障碍.
主要方法:
- 对61名患有乳腺癌的巴西妇女进行了定性描述性研究.
- 通过社会人口调查问卷和后续访谈收集的数据.
- 使用定性研究报告准则分析的采访.
主要成果:
- 大多数参与者都很难定义ACP;近40%的人无法.
- 确定了关键障碍:文化抵抗讨论死亡,家庭/医生依赖决策,以及信息差距.
- 一个多层次模型揭示了文化禁忌,家庭依赖和系统惯性如何阻碍ACP.
结论:
- 误解和系统性障碍阻碍了ACP在常规瘤治疗中.
- 一个概念框架解释了非洲和非洲的边缘化.
- 干预措施应侧重于患者教育,专业沟通和机构支持.
相关概念视频
Patient-centered Care
3.1K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
3.1K
Planning Nursing Care I
5.9K
The planning phase of the nursing process helps nurses set priorities, outline patient-centered goals and expected outcomes, and tailor nursing interventions to align with the aligned care plan. Through the planning phase, the nurse applies critical thinking skills to align and develop interventions according to the patient's needs. It provides continuity of care allowing patients to receive the maximum benefit from treatment. It serves as a pilot plan for allocating individual staff to a...
5.9K
Planning Nursing Care II
3.8K
A nursing care plan can present in two forms: informal and formal. Informal is a care plan for the individual use of the nurse and goals they wish to accomplish during their shift. Informal care plans are not included in the patient chart. A formal nursing care plan is a written or computerized guide that organizes patient care. It is further subdivided into two: standardized and individualized care plans. Standardized care plans are pre-populated care plans for specific patient populations,...
3.8K
Specialized Care Centers and Settings-I
1.4K
Specialized care settings or centers are situated in convenient locations within the community and offer care to a specific group or population. They consist of daycare facilities, mental health facilities, rural health facilities, educational institutions, industries, shelters for the homeless, and rehabilitation facilities.
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
1.4K
Specialized Care Centers and Settings-II
1.3K
Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
1.3K
Nursing Process for Patient and Caregiver Teaching II: Planning and Implementation
2.1K
Planning for learning involves the development of a teaching plan. Teaching plans are similar to nursing care plans—both follow the steps of the nursing process. Planning in the teaching process involves setting goals and outcomes. Here, goals identify what a patient needs to achieve to understand a healthcare topic better, whereas the outcomes are the action to be performed by the patient to achieve the goal within a timeframe. For example, if the goal is to educate the patient about...
2.1K


