北美肠道康复计划对儿科肠道衰竭患者的监测实践
Christina Belza1,2, Glenda Courtney-Martin1,2,3,4,5, Yaron Avitzur1,2,5
1Group for Improvement of Intestinal Function and Treatment (GIFT), The Hospital for Sick Children, Toronto, Canada.
Intestinal Failure (New York, N.Y.)
|February 6, 2026
概括
长期通过肠道营养 (PN) 治疗的小儿肠道功能衰竭 (IF) 患者有不同的监测实践. 需要就监管达成共识,以改善结果并防止IF管理中的并发症.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 临床营养学 临床营养学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 在儿科肠道衰竭 (IF) 中改善生存率需要长期的肠外营养 (PN).
- 目前IF患者的监测实践缺乏标准化,阻碍了并发症预防.
- 北美肠道康复计划 (IRP) 需要评估监测的一致性.
研究的目的:
- 评估北美IRP对PN的FI儿童目前的监测实践.
- 为了确定监测潜在并发症的变化.
- 突出了对标准监控协议的需要.
主要方法:
- 一项横截面调查分发给加拿大和美国的IRP.
- 收集的数据包括计划人口统计和各种健康参数 (例如肝功能,骨健康,神经认知) 的监测.
- 响应被描述性地分析,根据患者数量分层分类程序.
主要成果:
- 在接受调查的IRP中,有51%的IRP做出了回应,代表了PN的971名患者.
- 监测实践存在显著差异,只有2个项目报告了功能评估.
- 常规腹部超声波 (79.2%) 和静脉通透性监测 (72%) 是常见的,但骨健康,神经认知和生活质量评估的差异很大.
结论:
- 在北美儿科IRP中,监视实践存在很大差异.
- 基于证据的数据对于支持标准化监控协议的开发至关重要.
- 一个共识的监测计划可以提高早期并发症的检测和管理,改善患者的结果.
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