从患者的角度看肠道衰竭的经济影响 - - 一项试点研究
Maddison Breen1, Quiney Lin2, Liz Beyer3
1Nutrition and Dietetics Department, Royal Prince Alfred Hospital, Sydney, Australia.
Intestinal Failure (New York, N.Y.)
|February 6, 2026
概括
肠道衰竭 (IF) 患者面临着巨大的经济负担,平均每年自付费用为6099澳元,潜在收入损失很大. 这凸显了对FI个体的财务支持服务的需求.
科学领域:
- 胃肠病学 胃肠病学
- 卫生经济学 卫生经济学
背景情况:
- 肠道衰竭 (IF) 是一种慢性疾病,需要终身的家庭肠道/肠道营养和全面的医疗护理.
- 从患者的角度来看,量化IF的经济影响对于了解疾病的全部范围至关重要.
研究的目的:
- 确定肠道衰竭患者所面临的财务负担.
- 评估与IF相关的自有支出 (OOPE) 和潜在的收入损失.
主要方法:
- 开发了一份量身定制的问卷,并给成年FI患者使用.
- 在12个月的时间内收集了与健康相关的自付费用 (OOPE) 的数据.
- 描述性统计数据 (中位数和范围) 用于数据分析.
主要成果:
- 13名参与者报告年平均OOPE为6099澳元,占他们收入的24.4%.
- 大都市患者的OOPE比区域/农村患者高.
- 药品费用是个人支出最高的 (每年2160澳元),平均潜在收入损失为每年62,310澳元.
结论:
- 这项试点研究揭示了IF个人面临的巨大经济负担,包括巨大的收入损失.
- 研究结果表明,需要在更大的患者队列上进行扩大研究.
- 医疗保健提供者必须认识到并应对IF患者面临的财务挑战,促进获得财政援助.
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