癌症注册所驱动的家族癌症检测途径的消费者接受度:使用"可接受性理论框架"进行的定性研究
Zoe Fehlberg1, Sue M Evans2,3, Maria Bechelli2
1School of Health Sciences, The University of Melbourne, Melbourne, VIC, Australia.
Future oncology (London, England)
|February 7, 2026
概括
癌症注册表可以通过直接通知患者来改善家族癌症检测. 这种方法对于被诊断为癌症的个人来说是可以接受的,他们更喜欢采取独立行动或通知临床医生.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 遗传学 遗传学 是一个
背景情况:
- 对罕见瘤的家族癌症测试转诊率低于最佳水平.
- 癌症登记册收集全面的数据,可以为临床实践提供信息.
- 当前家庭癌症测试转诊率存在社会梯度.
研究的目的:
- 调查癌症注册所驱动的家族癌症测试通知途径的消费者接受度.
- 确定癌症登记处对家族癌症检测通知的首选方法.
主要方法:
- 进行了一项定性研究.
- 采用了半结构面试,根据可接受性的理论框架.
- 采访了19名最近被诊断患有癌症的个人,他们符合家族癌症检测标准.
主要成果:
- 参与者认为癌症注册驱动的通知途径是可以接受的.
- 个人更喜欢从癌症登记处直接通知有关家族癌症检测.
- 关键考虑因素包括时间,语气,语言,提供的信息,数据安全性和合法性验证.
结论:
- 被诊断出患有癌症的个人发现拟议的服务模式是可以接受的.
- 参与者更喜欢用资源独立对发现采取行动,或者让癌症登记处通知他们的临床医生.
- 需要进一步开发流程和资源,包括数字化选项,以消费者投入为基础.
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