在初级保健电子咨询中,知情同意的质量和界面可用性:跨部门研究
Curtis Parfitt-Ford1, Lisa Ballard2,3, Adriane Chapman1,3
1School of Electronics and Computer Science, Faculty of Engineering and Physical Sciences, University of Southampton, Southampton, United Kingdom.
JMIR human factors
|February 9, 2026
概括
远程医疗保健的在线同意流程可能无法确保真正的知情同意,从而危及患者的自主权. 提高界面的可用性可以提高同意质量,但目前的系统需要对道德远程咨询进行重大重新设计.
科学领域:
- 数字健康伦理学 数字健康伦理学
- 人与计算机的交互
- 知情同意研究研究 信息化同意
背景情况:
- 患者自主权是医疗保健的核心伦理原则,强调知情同意.
- 在线同意过程面临由于操纵性或令人困惑的界面造成的表面协议风险,称为"仅在名称上的同意".
- 对于处理敏感患者数据的远程初级保健咨询来说,这尤其令人担忧.
研究的目的:
- 评估通过现有和新型的远程电子咨询接口获得的知情同意的质量.
- 评估这些数字同意机制的可用性.
主要方法:
- 55名英国成年人与模拟电子咨询同意接口互动.
- 参与者填写了可用性问卷,并对他们对同意细节的理解进行了评估.
- 计算了系统可用性量表 (SUS) 和新的数字收集知情同意质量 (QuICCDig) 评分.
主要成果:
- 更高的可用性 (SUS分数) 与更好的同意质量 (QuICCDig分数) 有显著的相关性.
- 现有和新型接口都表现不佳,SUS分数相当于"F"等级.
- 显著的大多数参与者不记得做出隐私决策 (45%) 或被提供替代方案 (87%).
结论:
- 目前的远程医疗同意方法可能不足以获得有效的知情同意.
- 增强的界面可用性对收集的数字同意的质量产生了积极的影响.
- 优先考虑高质量的界面设计对于开发道德和有效的电子咨询系统至关重要.
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