患者对PMR的体验:一种定性叙事文献综述
Max Yates1,2, Janice Mooney3, Pratyasha Saha1,2
1Norwich Medical School, University of East Anglia, Norwich, UK.
Rheumatology advances in practice
|February 11, 2026
概括
患有多发性肌痛风湿症 (PMR) 的患者经历往往被忽视,并且与临床观点有所不同. 了解患者对疾病管理的看法,特别是关于葡萄糖皮质激素治疗和复发和缓解的术语,对于改善护理至关重要.
科学领域:
- 类风湿病学 类风湿病学
- 定性研究是指质量研究.
- 患者报告的结果
背景情况:
- 多发性肌痛风湿症 (PMR) 是一种常见的炎症状况,导致肩膀和部疼痛/硬.
- 患者对PMR的经验未得到充分研究,并且经常与临床医生的观点形成对比.
- 现有的研究缺乏关于患者对PMR"复发"和"缓解"的看法的深度.
研究的目的:
- 探索患者的经验和对管理多肌痛性风湿症 (PMR) 的看法.
- 调查患者对关键临床概念的观点,如PMR中的"复发"和"缓解".
- 确定PMR临床定义和患者经验之间的差距.
主要方法:
- 在四个电子数据库中进行了全面的文献搜索.
- 确定并选择了报告患者在PMR中的体验的定性研究.
- 采用了主题综合来整合来自五项纳入研究的发现.
主要成果:
- 出现了三个总体主题:诊断的途径,管理不确定性和日常生活的挑战.
- 患者报告诊断延迟和对葡萄糖皮质类药物的复杂反应 ("双刃剑").
- 患者对"复发"和"缓解"的描述往往与临床定义有所不同.
结论:
- 对于PMR的管理提出了独特的挑战,特别是在长期使用葡萄糖皮质激素时.
- 在PMR中,临床术语和患者经验之间存在很大的差距.
- 这些发现强调了在PMR护理和支持中需要更多以患者为中心的方法.
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