家庭的运作和照顾患有脑损伤的儿童:系统审查和主题分析
Daniëlle P A Bos1,2, Charlotte E Hilberdink3,4, Kirsten C Smeets1
1Psychiatry Department, University Medical Center Utrecht, Utrecht, The Netherlands.
Journal of pediatric psychology
|February 11, 2026
概括
儿科获得性脑损伤 (pABI) 显著影响家庭动态和情感福祉. 本综述介绍了乌得勒支家庭支持模型,以指导为应对pABI挑战的家庭提供临床护理.
科学领域:
- 儿科神经学 儿科神经学
- 家庭心理学 家庭心理学
- 康复医学是康复的医学.
背景情况:
- 儿科获得性脑损伤 (pABIs) 严重影响儿童及其家人,影响情绪健康,人际关系和日常生活.
- 缺乏对pABI对家庭运作的影响的全面理解.
- 现有的研究往往忽视了家庭面临的多方面的心理社会和实际挑战.
研究的目的:
- 系统地审查儿科获得性脑损伤 (pABI) 对家庭功能的影响.
- 开发一个概念模型来指导对受影响家庭的临床护理和支持.
- 综合当前关于pABI儿童家庭心理社会经验的证据.
主要方法:
- 从2013年1月到2024年11月,在七个主要数据库 (CINAHL,Embase,PsycINFO,PubMed,Scopus,Web of Science,PTSDpubs) 进行系统的文献搜索.
- 纳入标准:儿童 (0-18岁) 患有pABI,重点是家庭功能,英语,定性或混合方法. 不包括:脑震荡,未经同行评审的研究.
- 对包括在内的24篇文章进行了诱导性主题分析,这些文章被合成为儿科获得性脑损伤的乌得勒支家庭支持模型.
主要成果:
- 24篇文章检查了中度至重度的TBI,脑瘤,中风和儿童感染.
- 五个主要主题出现了:改变家庭动态,不同的现实,情感重量,应对情感挑战,需要被倾听和拥抱.
- 这些主题被整合到乌得勒支家庭支持模式中,包括照顾者,兄弟姐妹和收养亲属.
结论:
- 在pABI后的家庭功能需要考虑相互关联的心理社会和实际因素.
- 纳入研究的质量主要为低至中等,影响了可靠性和通用性.
- 开发的概念模型为理解家庭动态和改善pABI儿童及其家庭的结果提供了一个框架.
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