在斯堪的纳维亚的睡眠呼吸暂停 - - 一个充满对比的旅程
Laila Steen1, Heidi Jerpseth2, Nils Henrik Holmedahl3
1Department of Product Design, Faculty of Art and Design, Oslo Metropolitan University, Oslo, Norway.
International journal of qualitative studies on health and well-being
|February 12, 2026
概括
患有阻塞性睡眠呼吸暂停的患者通常会因为他们的病情和护理而感到负担. 改善睡眠呼吸暂停服务需要更个性化,更响应,更协调的医疗保健来满足患者的需求.
科学领域:
- 睡眠医学 睡眠医学
- 患者体验研究 研究研究
- 医疗保健服务设计
背景情况:
- 阻塞性睡眠呼吸暂停 (OSA) 是一种常见的疾病,具有重大的健康和社会影响.
- 关于斯堪的纳维亚地区OSA诊断,治疗和随访服务的患者体验的研究有限.
- 了解患者的观点对于提高OSA护理模式至关重要.
研究的目的:
- 探索挪威东南部阻塞性睡眠呼吸暂停患者在诊断,治疗和后续服务方面的经验.
- 为了确定改善睡眠呼吸暂停相关医疗保健服务的领域.
- 为未来的共同设计计划提供信息,以获得更好的服务模式.
主要方法:
- 采用了共设计方法,包括参与式研讨会和与十名参与者进行的半结构面试.
- 利用基于布劳恩和克拉克的数据分析框架的反射主题分析.
- 整合了参与者反和交叉数据源比较,以改进新出现的主题.
主要成果:
- 四个主要主题出现了:CPAP治疗的双重性质 (救生线和负担),患者在护理中的自力更生 ("被抛弃但没有堕落"),医疗保健提供者的复杂作用 (障碍和盟友),以及与OSA生活的情感/社会影响 ("暂停生活").
- 参与者的经验各不相同,这表明个性化服务可能会对结果产生积极影响.
- 调查结果强调了需要服务,承认OSA患者的身体和心理社会现实.
结论:
- 对于患有阻塞性睡眠呼吸暂停的人来说,显然需要更量身定制,更快速响应和更协调的医疗保健服务.
- 该研究的结果为未来的共同设计工作提供了基础,旨在优化OSA服务交付.
- 解决OSA患者的整体需求对于改善他们的生活质量和医疗保健体验至关重要.
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