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在儿科专科诊所使用家长和患者报告的结果措施:试点随机临床试验
Renee Jones1,2, Nancy Devlin1, Karen McLean3,4,5
1Melbourne Health Economics, University of Melbourne, Melbourne, Victoria, Australia.
JAMA network open
|February 12, 2026
概括
一般的儿科患者报告结果测量 (P-PROMs) 是可行的和可接受的专业儿科门诊护理. 这项试点研究显示了高完成率和积极的反,表明P-PROM可以提高护理.
科学领域:
- 儿科健康结果的结果
- 临床试验方法论 临床试验方法论
- 以患者为中心的护理
背景情况:
- 一般的儿科患者报告结果指标 (P-PROMs) 显示了改善儿科专科护理和患者与临床医生的互动的潜力.
- 关于P-PROM在这些环境中的可行性和可接受性的证据是有限的.
研究的目的:
- 评估使用P-PROM在儿科专科门诊儿童护理点的可行性和可接受性.
- 评估EuroQoL青年5维问卷,5级 (EQ-5D-Y-5L) 在常规儿科护理中.
主要方法:
- 一项试点随机临床试验,涉及87名儿童 (4-17岁) 和他们的护理人员,分别在四个专科诊所进行.
- 干预组在预约前完成了EQ-5D-Y-5L,结果被整合到电子病历中.
- 对照组接受了标准的门诊护理,没有完成P-PROM.
主要成果:
- 实现了93.0%的高P-PROM完成率,证明了可行性.
- 护理人员 (89.2%) 和临床医生 (64.3%) 报告P-PROM是可以接受的.
- EQ-5D-Y-5L成功收集并用于常规儿科专科护理.
结论:
- 收集和使用EQ-5D-Y-5L在儿科专科门诊机构内是可行的和可接受的.
- 需要进一步的研究来探索P-PROMs对护理质量和患者结果的定量影响.
- 这项研究支持P-PROMs的整合,以提高儿科医疗保健的提供.
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