让利益相关者参与政策信息化:解锁负责任的健康数据访问以促进安大略省的创新
Karen Teune1, Kathleen Bissonnette1, Frank Myslik1,2
1Institute of Health Policy, Management and Evaluation, University of Toronto.
Studies in health technology and informatics
|February 13, 2026
概括
安大略省 安大略省 安大略省 安大略省 安大略省
科学领域:
- 医疗信息学 医疗信息学
- 卫生政策 卫生政策
- 数据治理数据治理
背景情况:
- 安大略省拥有广泛的健康数据集,但访问障碍和分散的治理阻碍了创新和结果改进.
- 对健康数据私有化的负责任导航对于研究和合作至关重要,同时保持公众的信任.
研究的目的:
- 在安大略省探索负责任的健康数据私有化战略.
- 为负责任的数据访问制定统一的框架,让利益相关者参与识别推动因素和风险.
- 为政策框架提供可行的建议,以平衡创新与道德管理.
主要方法:
- 利益相关者参与,以确定数据访问的推动因素和风险.
- 检查当前的数据共享途径和法律约束 (例如,PHIPA).
- 治理差距和国际模型的分析 (英国的可信研究环境,芬兰的Findata).
主要成果:
- 确定在安大略省负责访问健康数据的关键障碍和促进因素.
- 评估影响数据共享的法律和治理环境.
- 国际数据治理框架的比较分析.
结论:
- 对安大略省来说,制定一个对负责任的健康数据访问的统一框架是必不可少的.
- 需要采取行动的建议来平衡创新,道德管理和公众信任.
- 负责任的数据解锁可以促进伙伴关系,加速发现,并促进数字健康领导力.
关键词:
健康数据治理健康数据治理安大略省卫生数据委员会菲帕 (Phipa) 是一个鱼.数据私有化数据私有化数字健康领导力数字健康领导力创新政策的创新政策公共信任公众信任公私伙伴关系是公私伙伴关系.研究获取研究获取更多相关视频
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