支持初级高度脑瘤患者及其亲属的干预措施:范围审查
Pernilla Ståhl1, Ingela Henoch2, Ramona Schenell3
1Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 100, 405 30, Gothenburg, Sweden; Department of Neurosurgery, Sahlgrenska University Hospital, Region Västra Götaland, Blå Stråket 5, Floor 3413 45, Gothenburg, Sweden.
概括
对高度脑瘤的支持干预措施对患者和亲属显示出有希望的结果,改善了生活质量和心理社会结果. 许多干预措施仍处于早期阶段,但已显示出积极效果.
科学领域:
- 神经瘤学神经瘤学
- 患者支持服务服务.
- 心理社会瘤学
背景情况:
- 原发性高度脑瘤对患者及其家属构成重大挑战.
- 有效的支持干预对于管理与这些诊断相关的复杂需求至关重要.
研究的目的:
- 系统地绘制和审查现有的支持干预措施,为初级高度脑瘤患者及其亲属.
- 确定干预的类型,目标和报告的结果.
主要方法:
- 对电子数据库和参考列表进行系统的文献搜索.
- 包括2013年至2025年间发表的文章.
- 数据提取,凝聚,比较和对干预特征和结果进行分类.
主要成果:
- 包括34篇文章,重点关注个性化支持,护理计划,康复,心身护理和教育.
- 干预措施针对患者,亲属或两者兼而有之,其中大多数受益于两个群体.
- 对患者 (症状,认知,心理社会功能) 和亲属 (生活质量,心理社会结果,掌握) 报告了积极的影响.
结论:
- 支持干预措施对患有高度脑瘤的患者及其亲属显示出有希望的结果.
- 干预措施对各种结果措施产生积极影响,提高生活质量和患者/相对信心.
- 尽管有积极的发现,但许多干预措施仍处于早期实施阶段,这表明需要进一步开发和传播.
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