更好的设计,更好的参与,更好的数据:青少年对改善健康研究的见解
Mohammad Karimipour1, Mina Fazel1, Emma Soneson1
1Department of Psychiatry, University of Oxford, Oxford, UK.
概括
青少年参与健康研究改善了研究人员关系,参与者选择和控制. 赋予青少年权力可以提高研究中的参与度,代表性和数据准确性.
科学领域:
- 青少年健康研究 青少年健康研究
- 患者和公众参与研究.
- 定性研究方法 定性研究方法
背景情况:
- 青少年健康研究面临诸多挑战,包括代表性差,长期参与有限,以及不准确的自我报告数据.
- 了解青少年的观点对于改善研究参与和数据完整性至关重要.
研究的目的:
- 探索青少年对参与健康研究的看法.
- 确定在研究研究中增强青少年参与,代表和数据质量的策略.
主要方法:
- 九个焦点小组与五所英语学校的46名青少年 (16-18岁) 进行了调查.
- 构造主义基础理论被用来分析影响参与和交互过程的因素.
- 一个年轻人咨询小组 (YPAG) 提供了关于研究设计和概念模型的反.
主要成果:
- 积极的研究人员关系促进了情感安全,减少了对判断的担忧.
- 在整个研究过程中,青少年的选择和控制增加了安全感和参与感.
- 将研究视为具有影响力的合作,使青少年能够提供准确的个人数据.
结论:
- 提高青少年参与度,代表性和数据质量需要大量的时间和资源投资.
- 培养积极的关系和提供选择/控制是关键策略.
- 对青少年来说,清楚地沟通研究影响,并解决对判断的担忧是必不可少的.
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