医疗保健使用>癌症诊断后2年:在5710名患有不同类型癌症的患者中进行的一项调查结果
Floortje Mols1,2, Noortje van Willegen3, Dagna Lek3
1Department of Medical and Clinical Psychology, CoRPS - Center of Research on Psychological Disorders and Somatic Diseases, Tilburg University, Tilburg, the Netherlands.
许多荷兰的癌症幸存者在治疗结束后的很长一段时间内,仍然需要专业和同行支持. 改善获得负担得起的护理和扩大支持网络对于长期的生存至关重要.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者支持 患者支持
背景情况:
- 长期的癌症幸存者面临着独特的挑战.
- 了解癌症幸存者的医疗保健利用率对于改善治疗后护理至关重要.
研究的目的:
- 在诊断后两年多的荷兰癌症幸存者的横截面样本中调查医疗保健使用和支持需求.
- 识别与接受专业护理和支持相关的因素,以应对长期后果.
主要方法:
- 荷兰癌症患者组织联合会 (NFK) 与患者代表和研究人员一起开发了一项横向的在线调查.
- 该调查通过电子邮件,网站和社交媒体分发,以接触广泛的癌症幸存者样本.
主要成果:
- 在5710名受访者中,89%的人报告了长期的癌症/治疗相关后果.
- 三分之一 (33%) 接受了这些问题的专业护理,医疗专家,理疗师和全科医生是主要提供者.
- 15%的人希望得到专业的护理,但由于诊断后的时间或成本等因素而没有得到;10%的人希望得到同行支持,但没有得到.
结论:
- 长期癌症幸存者的很大一部分对专业和同行支持都有未满足的需求.
- 建议改善获得负担得起的专业护理,扩大同行支持和个性化后续.
- 在荷兰医疗保健系统中,减少寻求帮助的耻辱是必不可少的.
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