黑人晚期肺癌患者的症状管理研究的可行性和可接受性
Claire C Conley1, Brenna Mossman1, Ayomide Aduloju1
1Department of Oncology, Georgetown University (C.C.C., B.M., A.A., J.S., J.D.R., C.K.), Washington, District of Columbia, USA.
这项研究发现,症状评估和共享决策 (SDM) 研究程序对于晚期肺癌黑人患者来说是可行的和可接受的. 参与者提供了有价值的建议,以提高未来息治疗研究的包容性.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 健康 公平 卫生 公平
背景情况:
- 历史上被边缘化的种族和民族群体在症状管理研究中代表性不足.
- 关于提高这些研究的包容性和覆盖范围的了解很少.
研究的目的:
- 在晚期肺癌黑人患者中确定症状评估和共享决策程序的可行性和可接受性.
- 收集参与者关于改善研究程序的建议.
主要方法:
- 混合方法研究涉及晚期肺癌黑人患者.
- 程序包括基线和后续调查,瘤学预约的可选音频录制和半结构面试.
- 治疗可接受性和偏好问卷 (TAPQ) 评估了程序的可接受性.
主要成果:
- 在2个月内,入学率 (86%) 和留学率 (90%) 超过了先验值 (≥70%).
- 研究程序被评为可接受 (88%的观察),超过先验值 (≥70%).
- 定性主题包括参与者的动机,研究经验和对未来研究的建议.
结论:
- 大多数参与者可以接受沟通,息护理和SDM研究的共同研究实践.
- 识别的机会可以为包容性息护理和沟通研究提供最佳实践信息.
- 这些发现支持开发更具包容性的研究方法.
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