开发韩国标准化心力衰竭注册表:从整合KorAHF和KorHF III的经验
Eui-Soon Kim1, Huijin Lee2, Jong-Chan Youn1
1Division of Cardiology, Department of Internal Medicine, Seoul St. Mary's Hospital, Catholic Research Institute for Intractable Cardiovascular Disease, College of Medicine, The Catholic University of Korea, Seoul, Korea.
International journal of heart failure
|February 16, 2026
概括
韩国通过协调来自两个大型队伍的数据,建立了一个统一的心力衰竭 (HF) 注册表. 这种标准化数据集使得HF患者的表型能够精确确定,并支持改善疾病管理和国家卫生政策.
科学领域:
- 心脏病学 心脏病学
- 医疗信息学 医疗信息学
- 公共卫生 公共卫生
背景情况:
- 韩国的心力衰竭 (HF) 患病率和成本不断上升,需要建立一个国家标准化的潜在注册表.
- 现有的注册表缺乏标准化的数据定义,阻碍了有效的比较和现实世界的证据生成.
- 需要改善高频率的质量监测,结果比较和数据驱动的临床实践指南.
研究的目的:
- 通过整合和协调来自韩国最大的心力衰竭登记处的数据,创建一个统一的国家心力衰竭 (HF) 队列.
- 开发一个标准化的,分层的,可互操作的韩国高频标准数据集,与国际准则保持一致.
- 为精确的HF患者表型,预后因素识别和未来健康政策制定奠定基础.
主要方法:
- 两个主要的韩国HF注册表 (KorAHF和KorHFIII) 的整合,形成一个12976名住院患者的队列.
- 在人口,临床,成像,生物标志物,治疗和结果变量之间实施协调管道.
- 系统的数据质量检查和一个多学科小组的结构化决策过程来定义韩国高频标准数据集.
主要成果:
- 成功创建了一个统一的全国HF队列,共有12,976名患者.
- 开发了韩国高频标准数据集,这是一个协调,分层和可互操作的变量集,涵盖六个关键领域.
- 标准化数据集使得HF表型和预后因素的精确识别成为可能,从而促进结果分析和指导方针的制定.
结论:
- 综合平台和标准化变量为韩国心力衰竭 (HF) 管理提供了基于证据的基础.
- 该倡议支持对治疗模式的时间分析,为临床实践准则提供信息,并促进未来的注册计划.
- 该平台提高了数据的准确性,可比性和代表性,这对于提高质量和监测韩国高频负担至关重要.
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