探索数字工具的策略,以支持青少年和年轻成年人接受血造干细胞移植及其护理伙伴的药物坚持:定性形成性研究
Gavin Raab1, Zoe Bowen1, Skyla Shea1
1Department of Pediatrics, University of Michigan, Michigan Medicine, Ann Arbor, MI, United States.
JMIR formative research
|February 17, 2026
概括
这项研究发现,目前的药物坚持工具对于接受血造干细胞移植 (HCT) 的青少年和年轻人来说是不够的. 需要一个为患者护理合作伙伴设计的移动健康 (mHealth) 应用程序,以改善遵守和协作.
科学领域:
- 在瘤学瘤学.
- 血液学 血液学 血液学
- 数字健康数字健康
背景情况:
- 同源性造血干细胞移植 (HCT) 需要严格遵守免疫抑制药物治疗.
- 青少年和年轻人 (AYA) 面临着独特的坚持挑战,平衡独立性与依赖护理伙伴.
- 现有的干预措施很少解决AYA护理合作伙伴对药物坚持的难题.
研究的目的:
- 探索当前的HCT药物坚持策略和AYA及其护理合作伙伴的挑战.
- 了解对数字技术的态度和基于应用程序的坚持支持在二元期内.
- 为设计一个以用户为中心的移动健康 (mHealth) 应用程序提供信息.
主要方法:
- 定性研究涉及焦点小组和与AYA (12-39岁) 和他们的护理伙伴进行的个人/双叶面试.
- 半结构化会议收集了关于遵守实践和应用程序设计偏好的反.
- 使用感应和演编码对转录数据进行系统的定性分析.
主要成果:
- 当前的提醒和组织工具往往不足以保持一致的遵守.
- 坚持障碍是多方面的,涉及患者自主权和护理合作伙伴支持的动态.
- 医疗保健协会和医疗保健合作伙伴都对为共同的坚持目标而进行二进制数字健康干预表达了强烈兴趣.
结论:
- 形成性研究突出了AYA护理合作伙伴对象中复杂的坚持动态.
- 支持一个双向的mHealth应用程序,以增强药物坚持和协作.
- 干预开发应侧重于共同的目标和关系质量,以改善HCT结果.
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