静脉管患者的旅程:从静脉管疾病协会 (VeDA) 登记处的见解
Ali Rafati1, Sami I Nassar2, Shaun A Nguyen2
1Department of Neurology, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
Annals of clinical and translational neurology
|February 18, 2026
概括
患有前体障碍的患者往往有多种诊断,并面临分散的护理,导致严重的残疾. 改善诊断清晰度和协调的多学科护理对于更好的治疗结果至关重要.
科学领域:
- 神经学 神经学
- 耳鼻喉科 耳鼻喉科 耳鼻喉科
- 静脉管系统疾病 静脉管系统疾病
背景情况:
- 静脉症状显著影响日常生活和功能.
- 了解现实世界患者的旅程对于识别前体疾病的护理缺口至关重要.
- 当前的诊断和治疗途径可能不完全符合这些疾病的复杂性质.
研究的目的:
- 描述症状概况,诊断趋势,提供者参与,以及前体障碍的治疗模式.
- 检查现实世界患者途径与前置诊断预期的临床特征的对齐.
- 识别有效护理的障碍和潜在的干预领域.
主要方法:
- 分析来自静脉管疾病协会 (VeDA) 患者登记册的数据.
- 包括2023年3月至2024年1月的数据.
- 专注于前庭诊断,症状模式,护理途径,治疗方法和诊断预测因素.
主要成果:
- 多重诊断的高患病率 (66.3%),前体偏头痛 (VM) 是最常见的 (50.6%).
- 患者平均咨询了15名医疗服务提供者,这表明医疗服务分散.
- 后勤回归确定了VM,Meniere病,持续的姿势感知性头 (PPPD) 和前庭神经炎 (VN) 的特定症状关联,尽管整体症状概况和治疗方法显示重叠.
结论:
- 静脉管疾病呈现出一个复杂的临床场景,症状重叠和多种诊断.
- 诊断准确性受到症状重叠和分散的护理途径的挑战.
- 需要更明确的诊断标准,加强提供者教育和协调的多学科护理,以改善患者的治疗结果.
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