开发一个囊性纤维化体重管理计划:共同设计研究的协议
Joanne Barrett1,2, Anne Elizabeth Topping3, Nikos Ntoumanis2,4
1West Midlands Adult CF Centre, University Hospitals Birmingham NHS Foundation Trust, Birmingham, England, B9 5SS, UK.
NIHR open research
|February 19, 2026
概括
高效的调节器疗法可以改善囊性纤维化 (CF) 的健康状况,但会导致体重增加. 一个共同开发的CF特异性体重管理计划 (CF WMP) 将补充对过重或肥胖的CF成年人的现有计划.
科学领域:
- 医学科学 医学科学 医学科学
- 公共卫生 公共卫生
- 行为科学 行为科学
背景情况:
- 高效调节器疗法 (HEMT) 改善了成年囊性纤维化 (CF) 患者的健康结果.
- 使用HEMT与显著的体重增加有关,导致超过30%的CF成年人超重或肥胖.
- 目前的体重管理计划可能无法充分满足CF患者的特定需求.
研究的目的:
- 概述一个囊性纤维化特异性体重管理计划 (CF WMP) 的共同开发.
- 为了确保CF WMP补充NHS数字体重管理计划 (WMP) 对于过重或肥胖的CF成年人.
- 为满足CF患者体重增加的独特饮食和体力活动需求.
主要方法:
- 使用基于人的三阶段方法 (PBA):规划,共同设计和优化.
- 与过重/肥胖的CF患者 (PwCFow/ob) 和医疗保健专业人员进行混合方法研究,以确定障碍物和促进者.
- 采用参与式研讨会进行共同设计和大声思考面试,以代地改进CF WMP.
主要成果:
- 在PwCFow/ob.中识别健康饮食和体育活动的障碍和促进因素.
- 制定指导原则,以指导参与设计,可接受和激励CFWMP的共同设计.
- 根据PwCFow/ob.的反,对CF WMP进行代改进.
结论:
- 共同开发的CF WMP旨在提高NHS数字WMP的可用性,以帮助患有CF的成年人.
- 该计划旨在满足自HEMT引入以来CF成年人的不断变化的健康需求.
- 这种量身定制的方法旨在改善这个特定人群的体重管理结果.
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