学龄儿童患有急性淋巴细胞白血病的真相讲述经验和偏好:一种现象学研究
Yen-Gan Chiou1, Hui-Chuan Wu2, Li-Min Wu3
1Department of Nursing, Kaohsiung Chang Gung Memorial Hospital, Chang Gung Medical Foundation, Kaohsiung, Taiwan; Department of Nursing, Fooyin University of Science and Technology, Kaohsiung, Taiwan.
Patient education and counseling
|February 19, 2026
概括
患有急性淋巴细胞白血病 (ALL) 的学龄儿童由于以父母为中心的沟通,往往对他们的疾病有模糊的理解. 他们更喜欢明确的,适合年龄的信息,根据他们的准备情况量身定制.
科学领域:
- 儿科瘤学 儿科瘤学
- 儿童心理学 儿童心理学
- 沟通研究 沟通研究
背景情况:
- 在儿科瘤学中讲真相是复杂的.
- 儿童对诊断披露的看法没有得到充分的研究.
研究的目的:
- 探索急性淋巴细胞白血病 (ALL) 的学龄儿童的诊断披露经验.
- 找出孩子在接受医疗信息时所喜欢的沟通方式.
主要方法:
- 描述性的现象设计. 描述性的现象设计.
- 与15名被诊断患有ALL的学龄儿童进行半结构化个人采访.
- 科拉伊齐斯的主题分析的方法.
主要成果:
- 儿童报告说,由于有限的披露和以父母为中心的沟通文化,他们对疾病有"模糊的理解".
- 孩子们表示他们更喜欢"以孩子为中心的真实讲述",希望信息与他们的准备程度保持一致,支持自我照顾,并以清晰和温柔的方式传递.
结论:
- 调查结果强调需要对儿童对诊断披露的看法进行特定背景的探索性研究.
- 强调了儿童瘤学中对发育敏感,包括儿童的沟通的重要性.
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