在瘤学中与少数民族共同决策:采访研究
Roukayya Oueslati1, Asiye Gedik2, Ria Reis3
1Department of Ethics and Law of Health Care, Leiden University Medical Center, Leiden, the Netherlands; Research Group Relational Care, Department of Health, Nutrition and Sport, The Hague University of Applied Sciences, The Hague, the Netherlands; Research Group Oncological Care, Department of Health, Nutrition and Sport, The Hague University of Applied Sciences, The Hague, the Netherlands.
Patient education and counseling
|February 19, 2026
概括
在癌症治疗中,通过提高医疗保健专业人员的文化能力和提供量身定制的支持,可以改善少数民族的共享决策 (SDM). 这赋予了患者权力,并导致了更个性化的治疗选择.
科学领域:
- 在瘤学瘤学.
- 健康差异 在健康上的差异
- 共享的决策方式
背景情况:
- 少数民族患者及其亲属在瘤医院护理中经常面临共同决策 (SDM) 的独特挑战.
- 由于各种因素,医疗保健专业人员 (HCP) 可能很难有效地让少数民族患者参与SDM.
研究的目的:
- 探索少数民族患者,亲属和医疗人员关于瘤学中SDM的经验.
- 通过将发现与价值结构联系起来,确定改善少数民族SDM的机会.
主要方法:
- 与少数民族患者 (n=22),亲属 (n=11) 和医疗保健人员 (n=14) 进行了采访.
- 采用反射性主题分析,利用施瓦茨适应SDM的价值理论.
主要成果:
- 确定的主要主题包括在SDM中赋权/剥夺患者权力的因素 (知识,支持,医疗保健工作者与患者的关系),通过审议来个性化治疗决策,以及由于文化能力差距,医疗保健工作者对患者背景的有限洞察力.
- 医疗保健专家报告说,由于缺乏文化能力和感知到的文化差异,他们面临着挑战.
结论:
- 加强少数民族的SDM需要加强医疗保健人员的文化能力,提供文化和语言定制的信息和支持,并促进关系建设.
- 建议为医疗保健工作者制定教育计划,开展有针对性的宣传活动,以及整合文化敏感的支持系统.
- 努力应响应文化方面,但不要过分强调差异,承认与一般患者群体的共同点.
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