CKD对拉丁美洲生活参与度的影响
Andrea Matus Gonzalez1,2, Anastasia Hughes1,2, Soledad Molina3
1Sydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Kidney international reports
|February 20, 2026
概括
患有慢性病 (CKD) 的患者经历绝望和衰弱症状,影响他们参与生活的能力. 应对这些挑战对于改善CKD患者的福祉至关重要.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 慢性病 (CKD) 造成显著的症状和治疗负担.
- 慢性病患者的并发症可能会进一步损害对生活活动的参与.
- 参与生活的优先事项在不同的人口和环境中有所不同.
研究的目的:
- 描述患有慢性病不需要置换疗法 (KRT) 的患者对生活参与的观点.
- 探索CKD对拉丁美洲患者日常生活和愿望的影响.
主要方法:
- 2024年4月以西班牙语进行了一次与促进突破小组的研讨会.
- 参与者包括患者,护理人员和医疗保健专业人员.
- 对研讨会成绩单进行了主题分析.
主要成果:
- 五个关键主题出现了:绝望和死亡感,感觉被污名化和评判,削弱症状,生命目标受到威胁,并获得希望和性.
- 患者报告说,他们感到恐惧,孤立,疼痛,疲劳,以及对家庭和职业的不确定性.
- 通过家庭支持,精神,临床医生的鼓励和体育活动来培养性.
结论:
- 由于绝望,孤立,症状和目标不确定性,CKD显著损害了生活参与.
- 制定应对这些挑战的策略对于提高CKD患者的生活质量至关重要.
- 需要以患者为中心的方法来支持在CKD的背景下参与生活.
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