患者如何在线寻找和评估与痕相关的信息:一项定性研究
Koen Maertens1,2, Nancy Van Loey1, Peter Moortgat1
1Organisation for Burns, Scar Aftercare & Research (OSCARE), 2170 Antwerp, Belgium.
European burn journal
|February 20, 2026
概括
这项研究通过与患者和临床医生共同设计内容,优化了基于病理性痕 (PS) 的证据网站MyScarSpecialist.com. 目标是改善关于痕管理的信息可访问性和患者赋权.
科学领域:
- 皮肤病学 皮肤病学
- 医疗信息学 医疗信息学
- 患者教育 患者教育
背景情况:
- 病理性痕 (PS) 存在重大挑战,但可靠的信息很少,导致依赖未经验证的在线来源.
- MyScarSpecialist.com是作为一个基于证据的痕信息资源而开发的.
- 这项研究的重点是通过与患者和临床医生共同创作来优化网站.
研究的目的:
- 为了优化基于证据的网站MyScarSpecialist.com.com.
- 加强患者和临床医生的参与网站开发.
- 提高有关病理性痕的信息的可访问性和全面性.
主要方法:
- 与患者和护理人员进行了半结构化的焦点小组会议.
- 记录,转录和主题分析的焦点小组会议.
- 采用了涉及最终用户的共同设计原则.
主要成果:
- 在信息来源中确定了关键主题,所需的内容,网站设计偏好和可读性.
- 患者和护理人员强调需要加强同行支持和对痕心理社会影响的资源.
- 突出显示观众对内容分层,信息负载和图像定位的偏好.
结论:
- 共同设计的策略对于优化医学教育网站至关重要.
- 确保包容性,可访问性和患者赋权是关键.
- 结果为开发有效的在线健康资源提供了洞察力.
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