基于网络的新技术促进了复杂慢性疾病的目标设定:随机对照试验
Jody Lin1, Bernd Huber2, Ofra Amir3
1Department of Pediatrics, School of Medicine, University of Utah, 100 Mario Capecchi Drive, Salt Lake City, UT, 84114, United States, 1 8016623645.
JMIR human factors
|February 20, 2026
概括
一个新的基于网络的工具,GoalKeeper,成功地促进了医疗复杂性的儿童的共同目标设定,提高了护理质量. 这种数字干预在访问之间维持了目标质量,打击了通常护理的下降.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 医疗信息学 医疗信息学
- 以患者为中心的护理
背景情况:
- 共同设定目标对于改善医疗复杂性的儿童的护理质量至关重要.
- 很少有研究评估了提高目标设定效率的干预措施.
- 患有医疗复杂性的儿童在临床访问之间经常经历护理质量的下降.
研究的目的:
- 评估一款基于互联网的新工具GoalKeeper,旨在促进儿科复杂护理中共同设定目标.
- 评估GoalKeeper对目标设定质量和整体护理质量的影响.
主要方法:
- 一个随机的阶梯试验,将GoalKeeper (干预) 与常规护理进行比较.
- 包括67个主要和子专业诊所的父子双.
- 利用慢性疾病护理的患者评估目标设定领域来衡量基线和1个月的结果.
主要成果:
- 使用GoalKeeper的干预组在随访时表现出持续的目标设定质量,与对照组不同.
- 干预组的护理质量也保持稳定,而对照组的护理质量则下降.
- 大多数家长在临床接触期间都成功使用了GoalKeeper工具.
结论:
- 通过GoalKeeper等数字工具促进的以家庭为中心的目标设定,可以缓解医疗复杂性的儿童的护理质量下降.
- 数字工具显示了改善患者目标的家庭提供者沟通的可行性.
- GoalKeeper是一个有前途的干预措施,用于加强儿科综合护理的共享决策.
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