共同设计一个框架,以传达以患者为中心的息护理结果:让患者和公众参与,重新理解理解
Mevhibe B Hocaoglu1, Adejoke Oluyase2, Deb Smith3
1Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK. Mevhibe.hocaoglu@kcl.ac.uk.
Journal of patient-reported outcomes
|February 21, 2026
概括
患者和公众参与息护理研究提高了以患者为中心的结果的沟通. 这种方法重新理解理解,促进及时访问和更好的数据使用超出终身护理.
科学领域:
- 抚慰性护理研究研究
- 患者和公众参与 (PPIE)
- 卫生沟通健康沟通
背景情况:
- 息护理提供以人为中心的支持,但经常被误解为仅仅是生命终点护理,延迟了获得.
- 这项研究解决了改善有关息治疗中以患者为中心的结果的沟通和参与的需要.
研究的目的:
- 共同设计一个框架,以加强公众的沟通和参与,以患者为中心的结果在息护理.
- 使用本框架共同生产资源,以改善对息治疗的理解和获取.
主要方法:
- 两个在线联合设计研讨会使用了知识转化为行动框架.
- 参与患者,公众成员和卫生/社会护理领导人.
- 在介绍了CovPall研究关于COVID-19缓和护理结果的证据后,主题地分析了讨论.
主要成果:
- 18名公众参与者和领导者积极参与了框架和资源开发.
- 清晰,易于使用的格式 (电影,信息图表) 是重视重构息护理超出生命终点.
- 强调使用以患者为中心的结果和患者报告的结果 (PRO) 数据来建立能力和改善服务.
结论:
- 有意义的患者和公众参与和参与 (PPIE) 加强了以患者为中心的结果和PRO证据的沟通.
- PPIE重新定义了息护理在生命终点之外的相关性,放大了研究的影响.
- 开发的框架提供了可转移的策略,用于在其他敏感健康领域传达复杂的结果.
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