共同设计的干预措施的可行性,以促进发展障碍儿童的家长赋权
Shazeen Suleman1, Puneet Parmar2, Deirdre Kelly Adams2
1Stanford University School of Medicine, Palo Alto, CA, United States; Temerty Faculty of Medicine, University of Toronto, Toronto, ON; MAP Centre for Urban Health Solutions, Unity Health Toronto, Toronto, ON, CA.
Academic pediatrics
|February 21, 2026
概括
这项研究共同设计了一项针对发育障碍儿童的护理人员的干预措施,改善他们获得服务和赋权的机会. 该计划展示了高需求和可接受性,突出了以社区为中心的设计的重要性.
科学领域:
- 基于社区的参与式研究.
- 以人为中心的设计
- 干预发展干预发展
背景情况:
- 发展障碍儿童的照顾者面临着巨大的压力和挑战,无法获得资源.
- 边缘化家庭在导航支持系统中遇到更大的困难.
研究的目的:
- 共同设计和测试试点干预措施,旨在增加对家庭的社会支持.
- 促进家长的赋权,并提高发展障碍儿童获得护理的机会.
- 评估开发的干预措施的需求,可接受性和实施情况.
主要方法:
- 采用基于社区的参与式研究和以人为中心的设计原则.
- 与社区组织和护理人员咨询委员会合作,共同创作.
- 通过参与者出席,调查前后和半结构化访谈收集数据.
主要成果:
- 一个由11名护理人员组成的咨询委员会共同开发了一项三部分干预措施:电话聊天组,工具包和研讨会.
- 该干预措施在两个地点实施,吸引了55名参与者.
- 参与者报告说,在导航服务方面增强了权力; 研讨会和工具包特别有效.
结论:
- 一个共同开发的三部分干预措施成功改善了服务获取,社会支持和护理人员的赋权.
- 该干预措施显示了高的接受度和需求,验证了以社区为中心的方法.
- 与社区合作设计对于创建有效和相关的干预措施至关重要.
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