我的脏 T.R.E.K.K. 我的脏 - - 通过技术思考,反思和赋权移植患者
Julia C Dunbar1, Wanda Pratt1, Lily Jeffs1
1University of Washington, Seattle, WA.
AMIA ... Annual Symposium proceedings. AMIA Symposium
|February 23, 2026
概括
年轻的移植患者需要数字工具来自我管理. 一个讲故事的原型帮助青少年反思他们的健康旅程,提高信心和自我意识,以更好地管理慢性疾病.
科学领域:
- 儿科脏病学 儿科脏病学
- 数字健康数字健康
- 青少年医学 青少年医学
背景情况:
- 接受移植的青少年和年轻人需要支持,以便过渡到独立的自我管理.
- 有效的自我管理需要促进技能培养和批判性反思的工具.
研究的目的:
- 开发和评估一个数字原型,旨在促进青年对移植过程的反思.
- 为设计未来的数字健康工具收集见解,以帮助青少年慢性疾病自我管理.
主要方法:
- 开发了一个数字原型,利用讲故事进行反思.
- 该原型与23名参与者 (13名年轻人,10名护理人员) 进行了评估.
主要成果:
- 参与者发现原型对于反思过去的经验,了解他们目前的健康状况和为未来做计划有价值.
- 青少年参与者报告说,移植后自我意识增强,对管理健康状况的信心增加.
结论:
- 数字讲故事工具可以有效地支持移植青少年的自我反思和自我管理.
- 为未来针对患有慢性疾病的青少年的数字健康干预提供了设计建议.
相关概念视频
Kidney Transplant III: Nursing Management
433
Postoperative Nursing Management for Kidney Transplant PatientsPostoperative nursing management care includes monitoring the surgical site, encouraging early movement, and promoting lung health through breathing exercises. Nurses also administer prescribed medications like H2-blockers, such as famotidine, or proton pump inhibitors, like omeprazole, to help prevent gastrointestinal ulcers and bleeding. Fungal infections in the mouth and bladder can result from immunosuppressive and antibiotic...
433
Kidney Transplant I: Introduction
552
A kidney transplant is a surgical approach that involves replacing a non-functioning kidney with a healthy one from a donor. This procedure is often a treatment option for end-stage renal disease (ESRD) patients. The method requires careful recipient selection, including evaluating various medical and psychosocial factors. These criteria vary between transplant centers but generally include assessments of the patient's overall health, adherence to medical recommendations, and lifestyle...
552
Kidney Transplant II: Surgical Procedure
512
Preoperative ManagementThe primary goals of preoperative management in kidney transplantation are to optimize the patient’s metabolic state and prepare them for surgery through diet adjustments, necessary dialysis, and tailored medical treatment. This phase also involves comprehensive infection screening and patient education about the surgical procedure and postoperative care to improve outcomes and adherence.Medical ManagementA comprehensive evaluation is required for both the living...
512
Chronic Kidney Disease III: Interprofessional Care
503
Chronic kidney disease (CKD) requires collaborative and comprehensive management. CKD progresses through stages and can lead to end-stage kidney disease (ESKD) if untreated. Interprofessional collaboration and patient education are crucial, enabling patients to manage their health and improve their quality of life.Diagnostic approach for chronic kidney diseaseThe diagnosis of CKD primarily focuses on the glomerular filtration rate (GFR), which assesses kidney function by measuring how well...
503
Continuous Renal Replacement Therapy
1.3K
Continuous Renal Replacement Therapy, also known as CRRT, is a procedural treatment for acute kidney injury (AKI) that gradually removes uremic toxins and fluids while maintaining acid-base balance and stabilizing electrolytes. It is particularly useful for hemodynamically unstable patients. Unlike intermittent hemodialysis, which is faster, CRRT provides a gentler approach over 24 hours, closely mimicking the function of natural kidneys. However, CRRT is not ideal for patients with...
1.3K
Acute Kidney Injury V: Interprofessional Care
378
Acute Kidney Injury (AKI) requires a collaborative healthcare approach to restore renal function and prevent complications. Essential management strategies involve monitoring fluid and electrolyte balance, adjusting medications, initiating dialysis when necessary, and providing nutritional support.Fluid and Electrolyte ManagementFluid Monitoring: Regularly monitoring body weight, central venous pressure, and urine output helps detect fluid imbalances early. Patient intake and output are...
378


