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数字聚焦中的 Vitiligo:德国的回顾性纵向研究
Enya Müller1, Christine Gasteiger1, Markus Böhm2
1Department of Dermatology and Allergy, Germany, School of Medicine and Health, Technical University of Munich, Biedersteiner Str.29, Munich, Germany, 49 8941403176.
JMIR formative research
|February 24, 2026
概括
公众对白风的兴趣很高,特别是在夏季,许多人在网上寻找治疗信息. 分析网络搜索可以揭示未得到满足的患者需求,并支持更好的疾病识别和教育.
科学领域:
- 皮肤病学 皮肤病学
- 公共卫生 公共卫生
- 数字流行病学数字流行病学
背景情况:
- Vitiligo 是一种慢性皮肤疾病,影响全球1-2%,导致色素脱落的斑块.
- 了解德国的公共利益和需求对于以患者为中心的白风管理至关重要.
研究的目的:
- 分析德国与白风相关的网络搜索行为,以此作为公众意识的指标.
- 确定公众信息需求和兴趣的区域差异.
主要方法:
- 使用谷歌广告关键字计划器 (2019年10月 - 2023年5月) 进行了回顾性纵向研究.
- 收集了7种语言的白风术语的每月搜索量.
- 分析了季节性,区域性和人口统计学相关性.
主要成果:
- 记录了超过770万次与白风相关的搜索.
- 74.81%的搜索是寻求一般信息.
- 搜索量在夏季达到顶峰,与温度和阳光相关;汉堡,柏林,布雷门的最高率;农村地区的人均搜索量较高.
结论:
- 公众对白风有很强的兴趣,特别是当皮肤暴露更大时.
- 对治疗信息的高需求凸显了对可访问护理的需求.
- 网络搜索数据提供了对公众意识,未满足需求的实时洞察力,并支持有针对性的教育策略.
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