评估日本的癌症控制活动:第三次癌症患者体验调查的结果
Yuichi Ichinose1,2,3, Tsutomu Toida4, Mariko Niino5
1Department of Public Health and Health Policy, Graduate School of Medicine, The University of Tokyo, Hongo 7-3-1 Bunkyo-Ku, Tokyo, 113-0033, Japan. yichinose@g.ecc.u-tokyo.ac.jp.
在日本,患者对癌症护理的经验通常是积极的,但对于罕见癌症患者和40岁以下的患者存在重大差距. 提高支持服务的认识和获取对于公平的癌症护理至关重要.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者体验 患者体验
背景情况:
- 日本国家癌症控制计划旨在改善癌症护理的提供.
- 评估患者体验对于制定政策和识别护理差距至关重要.
研究的目的:
- 评估患者在日本癌症护理方面的经验.
- 确定所有患者群体的护理方面的优势和差距,包括罕见癌症和年轻人 (<40岁).
主要方法:
- 从2023年12月到2024年3月,进行了一项全国性的横截面调查.
- 分析了自行管理的邮件问卷中的11,247个答案,使用分层随机抽样和权重来确定代表性.
主要成果:
- 患者对整体护理的评价很高 (8.2/10),但对支持服务的认识很低 (癌症咨询和支持中心的55.0%,同行支持的15.4%).
- 患有罕见癌症的患者和40岁以下的患者经历了延迟诊断,访问困难和更大的心理社会/财务负担.
- 年轻的患者报告了更多的情绪困扰和未满足的工作相关信息需求.
结论:
- 虽然癌症治疗通常受到好评,但对于特定的患者群体仍然存在重大挑战.
- 提高对支持服务的认识和使用率至关重要.
- 根据修订后的癌症控制计划,改善对年轻人的准入和有针对性的支持对于公平,以患者为中心的护理至关重要.
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