与父母心理社会结果相关的诊断对话期间以患者为中心的沟通:儿童白血病的探索性观察性研究
Petra Buursma1, Annemiek Mostert2, Esther M M van den Bergh1
1Princess Máxima Center for Pediatric Oncology, Utrecht, the Netherlands.
Patient education and counseling
|February 24, 2026
概括
瘤学家的以患者为中心的沟通可以减少儿童白血病的家长焦虑. 提高沟通技巧可以改善家庭参与和诊断期间的支持.
科学领域:
- 儿科瘤学 儿科瘤学
- 在医疗保健领域的沟通
- 心理社会瘤学
背景情况:
- 以患者为中心的沟通对于家庭导航儿科白血病诊断至关重要.
- 在这些关键对话期间,瘤学家的沟通行为存在有限的观察数据.
- 了解这些动态是支持孩子和父母的关键.
研究的目的:
- 量化瘤学家在儿科白血病诊断对话期间以患者为中心的沟通行为.
- 在这些讨论中评估家庭积极参与的程度.
- 探索瘤学家沟通,家庭参与和父母心理社会结果之间的关系.
主要方法:
- 一项结构化的观察性研究,涉及46个家庭和16名瘤学家.
- 使用以患者为中心的行为编码仪器编码的录音诊断对话.
- 通过PROMIS®问卷评估家长的焦虑和抑郁;使用多层次分析.
主要成果:
- 在谈话期间,瘤学家表现出促进行为 (22.4倍) 和抑制行为 (7.1倍).
- 家庭参与主要包括提问和表达提示.
- 瘤学家的促进行为增加与父母焦虑的减少相关 (p=0.04).
结论:
- 瘤学家以患者为中心的沟通显示出在儿童白血病诊断期间减轻家长焦虑的潜力.
- 需要进一步的研究来确定因果关系并探索潜在的机制.
- 沟通培训可以使瘤科医生有能力培养更有支持性的诊断对话.
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