"长期COVID患者希望从医疗保健服务中得到什么?" 从实体经验中进行定性探索
Clare Rayner1, Nikki Smith2, Ruairidh Milne3
1Patient Advisory Group Co-Lead, Locomotion Project, Manchester, UK.
概括
长期COVID (LC) 患者需要公平,标准化的医疗保健. 服务应侧重于早期干预,明确的诊断和持续的,以患者为中心的多学科护理,以获得更好的结果.
科学领域:
- 医学研究 医学研究
- 公共卫生 公共卫生
- 患者体验 患者体验
背景情况:
- 长期COVID (LC) 影响全球数百万人,造成了重大的个人,社会和经济负担.
- 目前对LC的医疗保健服务不一致,导致患者的护理分散,怀疑和延迟.
- 了解患者的优先事项对于优化长期COVID服务提供至关重要.
研究的目的:
- 探索长期COVID患者的医疗保健需求和优先事项.
- 为改善护理服务提供提供信息,识别接入障碍,并设定对服务改进的期望.
- 根据患者和临床医生的见解,定义多学科护理在管理长期COVID中的作用.
主要方法:
- 一项使用多个数据源的主题分析的定性研究.
- 包括半结构面试,研讨会和患者主导的审计.
- 包括来自患者咨询小组和英国临床医生/研究人员的27名长期COVID患者.
主要成果:
- 主题1:为所有长期COVID患者提供平等的机会,解决耻辱和临床医生的意识.
- 主题2:需要一致的,标准化的评估,诊断清晰度 (例如,自主功能障碍) 和早期医疗干预.
- 主题3:服务应协调,主动,适应性强,以患者为中心,并提供持续的审查,而无需提前出院.
结论:
- 长期COVID服务需要公平,标准化和基于证据的设计.
- 早期干预,适当的诊断和持续的随访对于改善患者的治疗结果至关重要.
- 以患者为中心的护理,及时治疗,并将长期COVID视为真实可治疗的疾病,提高了信任和结果.
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