中国夫妇结合性组织疾病的应对能力和弹性:一个文化知情的定性解释
Xingfeng Cai1, Shu Xu1, Chen Dong1
1Department of Rheumatology, Affiliated Hospital of Nantong University, Nantong University, Nantong, People's Republic of China.
Patient preference and adherence
|February 25, 2026
概括
情侣在管理结合组织疾病 (CTD) 时共同建立性. 了解这些双向相互作用是有效的患者护理和支持的关键,特别是对于患有CTD的女性.
科学领域:
- 风湿病学和免疫学
- 心理学和行为医学 心理学和行为医学
- 护理和医疗保健管理管理
背景情况:
- 连接组织疾病 (CTD) 不成比例地影响女性,给患者及其配偶带来严重的自我照顾和心理社会负担.
- 情侣层面互动在管理CTD和利用双层资源为护理方面的作用仍然不充分理解.
- 之前的研究已经观察到合作伙伴应对结果的零效应,表明需要探索潜在的交互机制.
研究的目的:
- 解释并深入了解情侣如何在管理CTD的背景下共同构建性.
- 阐明可能解释合作伙伴应对在量化研究中之前观察到的零效应的相互作用机制.
- 确定护士如何利用夫妇中的二元资源来改善CTD管理.
主要方法:
- 一项遵循COREQ指南的描述性定性研究.
- 针对十二对夫妇 (有CTD的妇女和她们的丈夫) 进行了有目的的抽样.
- 半结构化的联合采访 (60-90分钟) 通过反射主题分析进行分析,成员检查和双编码者共识可信度.
主要成果:
- 三个新兴的主题:疾病冲击的情感共振,双向应对 (避免体现的支持) 的演变,以及性的联合建设 (创造意义,信任,重新想象未来).
- 善意的合作伙伴支持可能会无意中破坏患者的自主权,这可能解释了积极的双向应对的零效应.
- 在CTD管理中的弹性是一种动态的,双层结构,由持续的夫妇互动形成.
结论:
- 结合组织疾病管理中的弹性是一种二级过程,通过持续的相互作用共同构建.
- 应该将夫妇,而不是个人,视为CTD管理的基本护理单位.
- 未来的干预措施应侧重于保持患者的自主权,同时促进真正的情感披露和夫妇之间的协作解决问题.
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