共同创建一个数字工具,以进行主动的生命终端通信:参与行动研究项目的协议
Malin Eneslätt1,2, Charlèss Dupont3, Eva Savolainen1
1Department of Health, Education and Technology, Luleå University of Technology, Universitetsvägen 16, Luleå, Norrbotten, 97187, Sweden, 46 920493924.
JMIR research protocols
|February 25, 2026
概括
本研究概述了一项参与式行动研究项目,旨在共同创建一个用于主动终生对话 (EoL) 的数字工具. 目标是开发一个广泛可访问的数字资源,使EOL讨论正常化.
科学领域:
- 数字健康数字健康
- 参与行动研究 参与行动研究
- 生命终端护理沟通 生命终端护理沟通
背景情况:
- 积极的生命终端 (EoL) 对话对于准备个人和医疗保健专业人员进行生命终端决策至关重要.
- 数字工具可以支持这些困难的对话,但它们的开发过程需要强大的报告.
- 该项目旨在共同创建和测试DöBra卡的数字版本,以促进早期,主动的EOL对话.
研究的目的:
- 概述一个资助的参与行动研究项目的协议,重点是共同创建一个数字工具,以进行主动的EOL对话.
- 报告开发和测试这个数字工具所采取的最初步骤.
主要方法:
- 该项目采用参与行动研究原则,有两个工作包 (WP):WP A用于代共创,WP B用于探索该工具对EOL对话的支持.
- 数据收集包括采访,会议文档,大声思考练习,观察,可用性数据和事件日志.
- 分析将使用定性,定量和混合方法方法,包括专题和纵向分析.
主要成果:
- 获得了道德批准,并成立了一个由13个组织的16名成员组成的咨询小组.
- 已经共同创建了一个数字工具的试点版本,目前正在与42名测试人员进行现场测试.
- 数据分析正在等待,公开发布计划于2026年.
结论:
- 共同创作过程有可能产生一个数字工具,用于积极的EoL对话,从而接触到各种各样的最终用户.
- 这个数字工具可以帮助正常化关于死亡作为生命自然组成部分的讨论.
- 该项目旨在通过可访问的数字技术增加EOL对话的社会影响力.
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