加强与丧亲有关紧急和重症监护试验的沟通 (ENHANCE):一种混合方法研究
Hannah Doughty1,2, Elizabeth Deja3, Bridget Young3
1Department of Public Health, Policy and Systems, University of Liverpool, Liverpool, UK h.c.doughty@ljmu.ac.uk.
BMJ open
|February 26, 2026
概括
丧亲的亲属希望在没有事先同意的情况下获悉已故家庭成员参与紧急研究的情况. 提供这种选择促进了对重症监护研究的透明度和信任.
科学领域:
- 紧急医疗 紧急医疗
- 关键护理研究研究 关键护理研究
- 临床试验伦理学临床试验伦理学
背景情况:
- 在紧急和重症监护研究中,知情同意是复杂的.
- 患者可能会在从他们或他们的亲属那里获得同意之前死亡.
- 丧亲可能不知道已故家庭成员的参与研究.
研究的目的:
- 探索沟通策略,在未经事先同意的情况下,向丧亲人通报参与研究的情况.
- 了解悲伤的亲属和医疗保健专业人员对披露的观点.
- 为未来的紧急和重症监护研究提供指导.
主要方法:
- 混合方法研究结合了电话调查和半结构面试.
- 参与者包括悲伤的亲属,研究/临床工作人员和法医/官员.
- 使用描述性统计和反射主题分析分析的数据.
主要成果:
- 大多数悲伤的亲属都很重视学习研究参与,强调透明度.
- 人们担心由验尸服务机构自动披露的潜在负担.
- 一个推的方法是为丧亲亲戚提供一个选择,以便在死亡后灵敏地及时收到信息.
结论:
- 在未取得事先同意的情况下,丧亲应该有权选择被告知参与研究的情况.
- 透明和敏感的沟通对于伦理紧急情况和重症监护研究至关重要.
- 结果将为设计和进行成人紧急和重症监护研究提供指导.
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