"给人们更多的时间,花时间正确解释事情":智障人士的宫查经验
Iva Strnadová1,2,3, Julie Loblinzk Refalo1,3, Rosalie Power4
1School of Education, Faculty of Arts, Design and Architecture, University of New South Wales, Sydney, New South Wales, Australia.
Journal of applied research in intellectual disabilities : JARID
|February 26, 2026
概括
智力障碍妇女在宫检查方面面临重大障碍,包括沟通不良和缺乏创伤相关护理. 解决这些问题对于改善参与和健康结果至关重要.
科学领域:
- 卫生公平性健康公平性
- 关于残疾人的研究.
- 公共卫生 公共卫生
背景情况:
- 在智力障碍者中,宫查的参与率明显较低 (70%).
- 有限的研究存在于这群人关于宫查的经验,特别是在澳大利亚.
研究的目的:
- 探索智力障碍妇女接受宫查的经历.
- 为了确定这一群体的宫查参与的障碍和促进者.
- 收集改善查流程的建议.
主要方法:
- 采用包容性联合制作和创伤知情方法的定性研究.
- 在新南威尔士州,半结构面试和以艺术为基础的身体映射与11名智力残疾参与者 (年龄26-65岁).
- 使用反射主题分析分析的数据.
主要成果:
- 医疗互动从积极的到创伤的,有着沟通问题和忙的程序.
- 在知情同意过程中发现的挑战以及支持人员的作用.
- 可访问信息的差距,系统的提醒,以及过去的创伤对查决策的影响.
- 参与者主张易阅读材料,更长的预约,创伤知情护理和真正的选择.
结论:
- 智力障碍妇女在宫检查中面临系统性障碍,包括沟通失败,同意不足以及缺乏创伤信息的护理.
- 参与者的建议为医疗保健系统改革提供了实际解决方案,以提高查的可访问性和质量.
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