让患有严重精神疾病的成年人参与研究:为有意义的患者和公众参与提供考虑和实际建议
Emily Shoesmith1, Petal Petersen Williams2,3,4, Jennifer Sweetman2
1Department of Health Sciences, University of York, York, UK. emily.shoesmith@york.ac.uk.
Research involvement and engagement
|February 26, 2026
概括
患者和公众参与 (PPI) 患有严重精神疾病 (SMI) 的成年人是可行的和有价值的. 有意义的参与需要规划,灵活性和定制支持,以共同生产心理健康干预措施.
科学领域:
- 心理健康研究 心理健康研究
- 患者和公众参与 (PPI)
- 干预 发展 干预
背景情况:
- 患者和公众参与 (PPI) 在心理健康研究中至关重要,但对于患有严重精神疾病 (SMI) 的成年人来说具有挑战性.
- 这份报告详细介绍了在一个为期五年的研究计划中,让有SMI实践经验的成年人参与其中的过程,好处和挑战.
- 该计划的重点是共同制作一项新的干预措施,以支持在住院心理健康护理后戒烟.
研究的目的:
- 概述研究计划中使用的PPI策略.
- 要突出从个人获得的见解与SMI的实践经验.
- 在整个研究过程中提供实际建议,以促进有意义的PPI.
主要方法:
- 使用反射方法来分析PPI过程.
- 参与涵盖了整个研究计划,从干预设计到传播.
- 数据是通过非正式的反,会议笔记和反思性的团队讨论收集的.
主要成果:
- PPI对研究产生了重大影响,特别是在塑造面向参与者的材料和干预资源方面.
- 早期规划,专注的促进,关系建设和清晰的沟通促进了成功的参与.
- 挑战包括平衡输入与可访问性,适应个人需求,并支持不同的参与水平.
结论:
- 让有SMI的成年人参与研究是可行的和有价值的.
- 有效的PPI需要仔细的规划,灵活性和定制的支持.
- 关系方法是使复杂人群在心理健康试验中能够有意义地作出贡献的关键.
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