探索急性和慢性疾病中医疗保健专业人员对症状支持的患者经验:一种定性研究
Malene Missel1,2, Mary Jarden2,3, Nanna Witting2,4
1Department of Cardiothoracic Surgery, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.
Scandinavian journal of caring sciences
|February 27, 2026
概括
由于医疗保健系统的缺陷,患者经常经历碎片化的症状支持. 在临床接触中提高连续性,沟通和同情心对于以人为中心的护理和患者福祉至关重要.
科学领域:
- 医疗保健管理的管理
- 患者体验研究 研究研究
- 临床心理学 临床心理学
背景情况:
- 症状管理对于患有疾病的患者至关重要,包括身体,主观和存在的维度.
- 医疗保健专业人员 (HCP) 的有效症状支持对于加强沟通,尊严和以人为中心的护理至关重要.
研究的目的:
- 探索患者在治疗症状方面获得医疗保健工作者支持的经验.
- 了解这些经历如何塑造患者的症状感知和应对策略.
主要方法:
- 定性研究采用对10名患有急性或慢性疾病的患者进行深入采访.
- 灵感来自Ricoeur的现象学解释学分析.
主要成果:
- 分碎的护理:患者认为症状支持是不一致的,受到组织结构和HCP互动的影响.
- 脆弱的遭遇:专业互动是脆弱的,认可,时间和能力影响了信任和患者安全.
- 忽视的需求:临床程序和结构往往未能解决患者的担忧,导致未解决的症状和生存需求.
结论:
- 症状支持受到关系动态和系统碎片化的影响.
- 当被忽视时,患者会感到被遗弃,必须自我协调护理.
- 加强关系连续性,明确职业角色和优先考虑对话是以人为中心的症状管理,尊严和福祉的关键.
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