患者在心房的经验和未满足的需求:对以人为中心的护理的影响
Ana Mónica Machado1, Ana Sofia Ferraz1, Fernanda Leite2,3,4
1Research Centre in Psychology, School of Psychology, University of Minho, Braga, Portugal.
Scandinavian journal of caring sciences
|February 27, 2026
概括
患有心房的患者经历了超出症状管理的挑战,突出了未满足的医疗保健需求和支持性服务的重要性. 了解他们的旅程对于整体的患者护理至关重要.
科学领域:
- 心脏病学 心脏病学
- 患者体验研究 研究研究
- 质量健康研究 质量健康研究
背景情况:
- 心房动 (AF) 是一种普遍的心律失常,显著影响患者的生活质量.
- 目前AF的临床治疗已经确立,但患者的感知和情绪反应尚未得到充分研究.
- 越来越重视以患者为中心的护理,需要更深入地了解AF患者的生活经历.
研究的目的:
- 探索被诊断为心房动的患者多方面的经验.
- 确定生活在AF的个体的感知需求.
- 为了深入了解患者的旅程,超越临床症状管理.
主要方法:
- 定性描述性研究设计.
- 与20名被诊断患有AF的成年患者进行了半结构面试.
- 使用NVivo软件进行主题内容分析,用于诱导主题开发.
主要成果:
- 五个主要主题出现了:"应对新常态"",接受疾病之旅"",走在疾病之旅"",未满足的医疗保健需求"和"改善支持服务".
- 患者面临的挑战超出了AF症状的管理.
- 确定了未满足的需求,指出了需要改善的医疗保健支持领域.
结论:
- 心房的管理需要解决患者的挑战,而不仅仅是症状控制.
- 综合,理论化和以患者为中心的方法对于支持AF患者至关重要.
- 调查结果强调需要针对不同患者环境量身定制的全面支持系统.
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