患者和照顾者的态度,以认知和行为测试在肌缩侧面硬化症
Leslie Ing1,2, Alys Wyn Griffiths1, Emily Mayberry1,2
1Sheffield Institute for Translational Neuroscience (SITraN), University of Sheffield, Sheffield, UK.
Neurodegenerative disease management
|February 28, 2026
概括
了解肌缩侧面硬化症 (ALS) 的认知变化至关重要. 患者和护理人员的观点显示,量身定制的,敏感的沟通增强了对认知查的参与,以改善ALS护理.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 患者护理 患者护理
背景情况:
- 认知和行为变化影响到50%的肌缩侧面硬化症 (ALS) 患者.
- 这些变化与较差的结果有关,但在临床实践中经常被忽视.
- 了解患者和护理人员的观点对于有效的认知查参与至关重要.
研究的目的:
- 探索患者和护理人员对ALS认知查的观点.
- 确定影响ALS认知评估参与的因素.
- 在ALS护理中为认知查提供以患者为中心的方法.
主要方法:
- 对10名ALS患者和9名护理人员进行了半结构化采访.
- 使用反射主题分析来解释数据.
- 从一个多学科的ALS诊所和英国运动神经元疾病协会招募了参与者.
主要成果:
- 对认知测试的参与受到情绪准备,价值观,关系,实际障碍和感知到的实用性的影响.
- 观点各不相同,从将测试视为为自我准备的准备,到对痛苦和身份的担忧.
- 护理人员支持用于规划的测试,但面临着平衡倡导和患者自主权的挑战.
- 对ALS认知症状的有限认识和不清楚的临床医生沟通减少了感知相关性.
- 当个性化,敏感地引入,并与可操作的结果联系在一起时,测试的影响最大.
结论:
- 在ALS的认知查需要一个灵活的,以患者为中心的战略.
- 关键考虑因素包括情绪准备,关系动态和清晰的沟通.
- 根据患者和护理人员的需求量身定制认知评估,可以改善对整体ALS护理的接受和整合.
相关概念视频
Restorative Care
Restorative care is provided once a patient has been discharged from a healthcare facility and requires additional services. The additional services include home care, rehabilitation programs, and extended care. Restorative care centers help the patient regain their previous level of functioning or acquire a new level of functioning due to the incapacitating effects of a disease or a disability. It aims to assist patients in enhancing their quality of life by encouraging independence,...
Classification of Illness
The meaning of illness is individualized to each person who experiences an alteration in health. In contrast, disease is a medical term indicating a pathological change in the structure and function of the body or mind. It is a condition that has specific symptoms and boundaries.
An illness is a response to a disease in which the person's level of functioning is changed compared with a previous level. The general classification of illness includes acute and chronic.
Acute illness is severe and...
An illness is a response to a disease in which the person's level of functioning is changed compared with a previous level. The general classification of illness includes acute and chronic.
Acute illness is severe and...
Techniques of therapeutic communication I: Active Listening, Sharing Observations, Validation, and Using Touch
The history of therapeutic communication can be traced back to Florence Nightingale, who emphasized the importance of developing trusting relationships with patients. She taught that the presence of nurses with patients results in therapeutic healing.
Therapeutic communication is not the same as social interaction. Social interaction has no goal or purpose and consists of casual information sharing, whereas therapeutic communication has a plan or purpose for the conversation. Therapeutic...
Therapeutic communication is not the same as social interaction. Social interaction has no goal or purpose and consists of casual information sharing, whereas therapeutic communication has a plan or purpose for the conversation. Therapeutic...
Patient-centered Care
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
Assessment of the Rectum and Anus
Evaluating the rectum and anus plays a crucial role in conducting a thorough physical examination of the gastrointestinal system. Although it may be uncomfortable and often embarrassing for the patient, it holds immense diagnostic value, particularly in detecting gastrointestinal diseases and abnormalities. This guide will explain how to perform this assessment using inspection and palpation methods.
Rectal Inspection
Begin by inspecting the perianal and anal areas for color, texture, rashes,...
Rectal Inspection
Begin by inspecting the perianal and anal areas for color, texture, rashes,...
Peripheral Artery Disease IV: Nursing Management
The nursing management of a patient with peripheral artery disease (PAD) begins with a thorough assessment of the patient’s health history and clinical manifestations.AssessmentHealth History: Evaluate the patient’s history of hypertension, hyperlipidemia, family history of cardiovascular issues, and lifestyle factors such as dietary patterns, smoking, and physical activity.Physical Examination:Assess the affected extremity for decreased or absent peripheral pulses, temperature changes,...


